ADHD Diagnosis Beyond the Label

July 17, 2024
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ADHD Diagnosis Beyond the Label

Whether you suspect ADHD in yourself or a loved one, or already have a diagnosis, this guide is for you. Perhaps you feel that your education, work performance or relationships are suffering due to ADHD. Or maybe you want to develop further understanding about a colleague or friend diagnosed with ADHD. You're not alone. Many find the path to an accurate ADHD assessment and treatment confusing. This guide equips you with the in-depth knowledge and resources needed to navigate this process effectively.

Don't Settle for a Label: Think Beyond Diagnosis

While an ADHD diagnosis can be a helpful tool for understanding challenges and accessing support, it can also have limitations. Firstly, ADHD can manifest differently in each person, and the diagnostic criteria might not fully capture the individual's unique experience. Secondly, the diagnosis itself doesn't provide a roadmap for managing symptoms – it requires further exploration of individual needs and the development of personalised strategies. Finally, long-term a label can sometimes lead to a sense of limitation, overshadowing the strengths and capabilities of individuals regardless of the diagnosis.

Understanding ADHD in Different Life Roles:

1) Student taking their GCSEs or A levels for the first time finding themselves underperforming compared with the class average. Despite having all the educational support and trying their best they feel something is holding them back. Very interesting some would report about doing well in certain specific subjects which are perceived as interesting, with less amount of homework. Whiles the subjects which are seen as boring to them they constantly underperform and worry about securing further university education. Some may not experience the difficulties until the first year of university when the problem may start with symptoms of anxiety and depression.

2) Professional doctor, solicitor, analyst, software engineer finds themselves stressed in the workplace or at home. Staying late and completing various tasks, or even working unpaid hours over the weekend had become the norm in their life. This starts to affect their relationships, or personal life giving up on hobbies which previously they used to enjoy. Sleep deprivation, anxiety, feeling of inadequacy and burnout can be one step away from collapse.

3) Entrepreneur well respected, running various operations and responsible for a high number of employees. Suddenly get themselves stressed due to noticing more anxiety and sleepless nights. Taking risks has always been their number one strength, but lately work became boring, or they may deal with problems which sometimes can take years to solve. Strategy and long-term planning have always been their Achillies; however, they strive in finding opportunity and solving problems requiring prompt interventions.

4) Prisoner, an unfortunate case, since a very young age got themselves into trouble. However, their impulsivity, self-medication with illicit substances got themselves being in constant trouble with the authorities. They couldn't stay in the class or complete any homework, and constantly had to be busy doing something, mixing with the wrong group of people lead from one problem to another. Substance use could've been the catalyst, only adding fuel to the inherit problems. In their adult life couldn't hold a job for long time, and the problems only continued leading from one offense to another.

Key takeaway: Mental health and ADHD can affect everyone, regardless of their level of education, social and economic status or values. Beyond the inattentive and hyperactive symptoms, there is a person with their unique psychology, social circumstances, personal goals and challenges. Often, an individual with ADHD can experience a successful and fulfilling life as long there is an adequate support tailored for their specific needs: professional, family support, and having the right circumstances allowing to exercise their strengths.

The name of the diagnosis can give the recipient some information about the symptoms, but it doesn't fully explain someone's personal struggles. This only highlights the importance of having a detailed diagnosis assessment and most important continuity of care.

Navigating an ADHD Assessment: Your First Steps

With more ADHD assessment options available in the UK, navigating the process can feel overwhelming. Given the evolving understanding of ADHD, securing an accurate diagnosis and continuity of care is very important since ADHD is a chronic condition. An accurate assessment ensures a safe and effective treatment plan tailored to your specific needs. Additionally, the most important is that a robust diagnosis provides clarity and support when facing potential challenges.

A detailed assessment opens the path towards accessing personalised care, by understanding the social and psychological factors, strengths and weaknesses, and where necessary co-occurring conditions. In particular in adults approximately half receiving a diagnosis are likely suffering from other difficulties such as sleep problems, longstanding anxiety, depression episodes, relationship problems, substance misuse, gambling problems or other neurodevelopmental conditions.

In some situations, a diagnosis shouldn't be established when the symptoms could be explained by another condition, the symptoms were not present for long enough or complex psychological factors.

Key takeaway: Seek a comprehensive assessment provided by a qualified professional if you think you may be suffering from ADHD.

Finding the Right Expert: Your Guide to Qualified ADHD Assessors

An essential first step when considering an ADHD assessment is to verify the assessor's qualifications. Imagine walking through a shop and searching to buy orange juice made 100% from oranges, very often it is not as easy as it says on the front label. You need to take your time and read the fine print on the back to discover what you are exactly purchasing. This task can be difficult for a neurotypical person, however people suffering from ADHD could find it close to impossible. Between busy schedules and potential costs, carefully comparing food labels can feel overwhelming.

A thorough ADHD assessment conducted by a qualified professional ensures its accuracy and reliability. These assessments are the foundation future decisions regarding treatment plans, accommodations, educational support or when you need to make proof of diagnosis or transfer care to a different provider.

When evaluating potential ADHD assessment options, prioritise the credentials of the person conducting the assessment.

Look for details regarding their professional background, professional registration with a regulatory body in the UK, training and experience in diagnosing and treatment of ADHD. By focusing on the assessor's qualifications, you can be confident that your diagnosis is conducted to a good standard. Throughout the journey it is very likely you may need to present the assessment document to other healthcare professionals: GPs, Psychiatrists, Psychologists, University, Athletic Committees or other institutions. Therefore, the quality of the assessment report is paramount.

Who Can Diagnose ADHD in the UK? Understanding Medical Professional Qualifications

In the UK, medical doctors typically hold a Bachelor of Medicine (MBBS, MBBCh, MBChB, MBChirB, Doctor of Medicine MD, or equivalent) and are required to be registered with the General Medical Council (GMC). Here's an overview of their typical training pathway:

  • Medical School: Lasting 4-6 years, this stage emphasises various foundational medical sciences like anatomy, physiology, pharmacology and clinical skills across various specialties.
  • Foundation Programme: This 2 years program provides supervised clinical experience in different hospital departments. Doctors refine their core skills and explore potential areas of specialization. Non-UK doctors may follow an equivalent pathway for GMC registration.
  • Specialisation: Some doctors choose to specialise; this can take a further 6-8 years. The process involves additional training, experience and exams to become a consultant in a specific area like psychiatry.

Consultant Psychiatrists:

In the U.K. Consultant psychiatrists typically have around 13 years of medical training experience or more, assuming full-time training. However, various factors can affect the overall training expertise. It's important to note that consultant psychiatrists' specific training experiences can vary depending on the program undertaken and their country of training. Upon the completion of training the psychiatrist can receive a CCT (Certificate of Completion of Training), or CESR (Certificate of Eligibility for Specialist Registration).

Paediatricians, Neurologist Consultants may also have expertise in diagnosing and treatment of ADHD. In the future there is likely more GPs to develop special interest in diagnosis and treatment of ADHD.

UK Qualified Professionals for ADHD Assessment: Beyond Doctors:

In the UK, alongside psychiatrists, several other healthcare professionals can contribute to the ADHD assessment process, according to the National Institute for Health and Care Excellence (NICE) guidelines Attention deficit hyperactivity disorder | Guidance | NICE. These professionals often work collaboratively to provide assessments and treatment:

  • Clinical Psychologists:  Hold a postgraduate doctorate in psychology and specialise in mental health assessment and treatment. They can conduct in-depth ADHD assessments using psychological tests and interviews.
  • Educational Psychologists:  Work within educational settings and may be involved in ADHD assessments for children and adolescents. Their assessments typically focus on the impact of ADHD on learning and educational needs.
  • Specialist ADHD Nurses:  These nurses possess specialised training and experience in ADHD assessment and management. They may work alongside other healthcare professionals as part of a multidisciplinary team.
  • "An appropriately qualified healthcare professional with training and expertise in the diagnosis of ADHD"

Important Considerations:

While a various array of professionals can be involved in ADHD assessment and treatments, some factors may influence the choice of assessor:

  • Individual Needs: Depending on the current challenges, symptoms, physical health and level of expertise required.
  • Assessment length: An adult will likely have more history to present, covering the full developmental history until present.
  • Complexity of case: Individuals where, other treatments were tried in the past, previous therapies with limited success, co-existing conditions
  • Age: for children and adolescents a child and adolescent psychiatrist, paediatrician, clinical psychologist, educational psychologist with relevant experience working with this particular age group is preferable.
  • Risk: in mental health risk is continuously assessed, and recommendations are made depending on the individual and clinic setting.

Beyond Diagnosis: Mastering Your ADHD and Living Your Best Life

An ADHD diagnosis is just one of the first steps towards a better life. Like other mental health conditions, ADHD treatment requires a holistic approach, considering biological, psychological, and social factors. Finding a qualified clinician to provide accurate diagnosis and treatment can be challenging. Locating a suitable ADHD coach can be even more difficult since currently coaching is not a regulated profession. Coaching is an effective tool which equips individuals with strategies to optimise their routines and minimise inattentive periods.

Ongoing ADHD treatment considerations:

  • Treatment needs to be personalised and adapt to your life: As your life changes, so might your ADHD treatment plan.
  • Physical health monitoring: Regular checkups are mandatory in particular when the person decides to pursue pharmacological support.
  • Potential health risks: Some studies suggest an increased risk for cardiovascular issues, while others suggest there are no differences to the normal population. However, ADHD is linked with higher rates of hypermobility, binge eating and obesity, migraine, sleep disorders and many other conditions.
  • Family impact: ADHD can affect family dynamics. Having in place strategies to enhance communication and build stronger relationships is essential
  • Job stability: With the appropriate support managing ADHD can improve your job, business performance and add stability to your life.
  • Goals: Each individual has their own set of goals and values. Therefore, in some situation's subtle changes in treatment plans may be required. Some individuals pursuing treatment can describe having less creativity, or a change of personality when the symptoms are fully controlled. Staying in touch with your healthcare provider allows for adjustments and ensures the best possible outcome.

Explaining ADHD diagnosis to people

ADHD is a hot topic, both in conversations and online searches. In the UK, ADHD it's one of the most searched conditions on Google. But how people react to your disclosure can vary greatly depending on their background and knowledge.

  • Supportive Reactions:  People who have personal experience with ADHD, either themselves or through loved ones, may be understanding and empathetic.
  • Misconceptions:  Unfortunately, some individuals may hold limited or outdated views on ADHD, leading to judgmental reactions.

Disclosing your ADHD diagnosis is a personal decision. It is always helpful to discuss the pros and cons with your healthcare professional. They can offer guidance based on your specific situation and support you in navigating potential reactions. Remember ADHD and other mental health challenges don't discriminate – they can affect anyone regardless of their education, profession or social economic status.

Does ADHD get worse with age?

The simple answer is no, ADHD typically doesn't worsen with age. However:

Approximately half of the individuals diagnosed with ADHD in the adult life, may also suffer from a co-occurring condition. While ADHD has the tendency to improve with time, other co-occurring conditions such as mood disorders or anxiety may have the tendency to follow a course of remission with episodes of relapse.

Some people may think their ADHD got worse with age, when in reality the condition was likely present since childhood. While the core challenges of ADHD remain, some adults may find ways to manage them more effectively as they gain experience and develop coping mechanisms. Life circumstances like work, education, relationships, and family can influence how ADHD presents itself. Stress or lack of structure can make symptoms more noticeable. Symptoms can also change over time. For example, hyperactivity may become less prominent in adults, while challenges with focus, organisation can be more disruptive.

For individuals struggling with ADHD, the good news is that it's one of the most treatment responsive conditions in mental health.

Can ADHD be misdiagnosed?

Misdiagnosis of ADHD, like other mental health conditions, is a concern. Historically, ADHD was often missed in childhood or underdiagnosed in certain groups. Today, there's growing concern about potential overdiagnosis. Currently, there is little research on overdiagnosis and adult ADHD.

The exact causes of ADHD, beyond genetic factors, remains unclear. However, this is not uncommon in mental health. The human brain's complexity, with its estimated 86 billion cells, makes understanding the origin of these conditions challenging.  It's a bit like trying to grasp the origins of the universe - vast and full of unknowns. Although there isn't a single blood test or brain scan to diagnose ADHD, a comprehensive assessment by a qualified professional is essential. To read more about our approach to the ADHD assessment diagnosis and treatment visit our page Private Adult ADHD Assessment.

What if ADHD is misdiagnosed?

While research on the long-term effects of ADHD misdiagnosis is not yet available, here are some potential consequences:

Most commonly untreated symptoms

Untreated ADHD can lead to a cascade of challenges. Difficulty focusing, completing tasks, and meeting deadlines can cause problems at school or work. These struggles might stem from an undiagnosed ADHD that went unnoticed in childhood. Limited access to specialised support, lack of teacher training, or mistaking symptoms for personality traits can all potential reasons for a missed diagnosis.

The impact of untreated ADHD goes beyond academic or work performance. The constant challenges can strain relationships with family, friends, and partners. Additionally, low self-esteem often develops due to ongoing struggles and feelings of inadequacy. The most concerning consequence, however, is the increased risk of mental health problems like depression, anxiety, addictions, substance misuse or gambling problems.

Unnecessary interventions

Misdiagnosis of ADHD can lead down two frustrating paths. First, someone might receive ineffective medication or experience unwanted side effects because the treatment is aimed at the incorrect condition. Second, therapy resources for another issue might be overshadowed by the ADHD diagnosis. This can be particularly disheartening, as the person may initially feel a sense of validation from the diagnosis, only to find the treatment ineffective. A sole focus on ADHD can delay seeking help for the existing or co-occurring mental health conditions requiring different treatments.

Important considerations

While ADHD treatment is highly effective for many (up to 80%), it's important to remember:

  • Treatment is not a diagnostic tool: It can't confirm or deny an ADHD diagnosis on its own.
  • Diagnosis can be complex: Unlike some physical health conditions, ADHD diagnosis relies on observation and evaluation, which can be affected by the assessor's experience.
  • Individual experiences vary: Some may find limitations with diagnosis treatment, requiring adjustments or exploring complementary approaches.
  • When the struggles persist and the diagnosis criteria for a condition are not met. We have access to a powerful tool, psychological formulation, exploring the root cause of the problems.
  • In the assessment process both the patient and the clinician should be aware of the: confirmation bias, specialist bias, unconscious, gender, racial and age bias.

Conclusion

The ADHD assessment and treatment journey starts with seeking a qualified professional for a comprehensive diagnosis. Remember, ADHD manifests differently in everyone. A thorough evaluation will consider your unique circumstances, strengths, and challenges, leading to a personalised treatment plan. It is highly important how and where you start your diagnosis journey. While ADHD is a lifelong condition, it's highly treatable. With the right support, you can manage your symptoms and live a fulfilling life. This guide explored the importance of understanding the need of a multifaceted strategy and accurate diagnosis. Many people with ADHD achieve great things, start your journey well!

Beyond the Diagnosis: Personalized ADHD Assessments for Adults

Get a clear picture of your ADHD symptoms with a comprehensive assessment and a personalised treatment plan.

Start your journey today - Adult ADHD Assessment London & UK

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Joint Hypermobility Links Neurodivergence to Dysautonomia and Pain - PMC (nih.gov)

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Risk of Cardiovascular Diseases Associated With Medications Used in Attention-Deficit/Hyperactivity Disorder: A Systematic Review and Meta-analysis | Cardiology | JAMA Network Open | JAMA Network

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Health care resource utilization and costs associated with psychiatric comorbidities in adult patients with attention-deficit/hyperactivity disorder | Journal of Managed Care & Specialty Pharmacy (jmcp.org)

Overlapping neurobehavioral circuits in ADHD, obesity, and binge eating: Evidence from Neuroimaging Research - PMC (nih.gov)

Unconscious Bias and the Diagnosis of Disruptive Behavior Disorders and ADHD in African American and Hispanic Youth - PMC (nih.gov)

Is Adult Attention-Deficit Hyperactivity Disorder Being Overdiagnosed? - PMC (nih.gov)

Adult ADHD: Underdiagnosis of a Treatable Condition - PMC (nih.gov)

Overview of Higher Training | Medical Hub (hee.nhs.uk)

Overview | Attention deficit hyperactivity disorder: diagnosis and management | Guidance | NICE

ADHD in adults (rcpsych.ac.uk) The Royal College of Psychiatrists

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Disclaimer: The information is not intended nor implied to be a substitute for professional medical advice, diagnosis or treatment. All content, and information, contained in this article is for general information purposes only and does not replace a consultation with your own doctor/health professional. Information about mental health topics and treatments can change rapidly and we cannot guarantee the content's currentness. For the most up-to-date information, please consult your doctor or qualified healthcare professional. For more information, you can check the Royal College of Psychiatrists (rcpsych.ac.uk)

Dr Stefan Ivantu

Dr Stefan Ivantu

Dr. Stefan Ivantu, M.D., MRCPsych is a Private Consultant Psychiatrist specialising in ADHD and complex cases. With extensive training completed in Oxford, UK, Dr. Ivantu is dedicated to providing personalised care to individuals with ADHD, empowering them to reach their full potential.

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